Caregiver Resources

American Association of Caregiving Youth

The mission of the American Association of Caregiving Youth (AACY) is to recognize, support, and promote the awareness of dual role youth who are both students and caregivers within their families.
www.aacy.org

Americans with Disabilities Act Home Page

Comprehensive site with links to the full text of the historic ADA, frequently asked questions, ADA regulations and technical assistance manuals, standards for accessible design, regional ADA and IT Technical Assistance Centers, enforcement agencies, and more.
www.ada.gov

ADAPT

ADAPT is an activist organization with an informal structure. To become involved you must be interested in changing the long term care system, getting individuals out of nursing homes and other institutions and getting people attendant services in the community.
www.adapt.org

American Association of People with Disabilities

AAPD is a membership organization of people with disabilities and their families that serves as a positive private-sector force to achieve the goal of full inclusion for people with disabilities in American society.
www.aapd-dc.org

DisabilityInfo.gov

A comprehensive online resource designed to provide people with disabilities with the information they need to know quickly and easily. With just a few clicks, the site provides access to disability-related information and programs available across the government on many subjects, including benefits, civil rights, community life, education, employment, housing, health, technology and transportation. www.
DisabilityInfo.gov

National Alliance for Caregiving

The National Alliance for Caregiving is dedicated to providing support to family caregivers and the professionals who help them and to increasing public awareness of issues facing family caregivers.
http://caregiving.org

National Clearinghouse on the Direct Care Workforce

The National Clearinghouse on the Direct Care Workforce is a national on-line library for people in search of solutions to the direct-care staffing crisis in long-term care.
www.directcareclearinghouse.org

National Council on Independent Living

The National Council on Independent Living (NCIL) is the oldest cross disability, grassroots organization run by and for people with disabilities. NCIL advances independent living and the rights of people with disabilities through consumer-driven advocacy.
www.ncil.org

National Family Caregivers Association

The National Family Caregivers Association (NFCA) supports, empowers, educates, and speaks up for the more than 50 million Americans who care for loved ones who have a disability, who are chronically ill or who are aged.
www.thefamilycaregiver.org

Center for Personal Assistance Services

The Center for Personal Assistance Services provides research, training, dissemination and technical assistance on issues of personal assistance services (PAS) in the U.S.
www.pascenter.org

World Institute on Disability

The World Institute on Disability (WID) is a nonprofit research, public policy and advocacy center dedicated to promoting the civil rights and full societal inclusion of people with disabilities.
www.wid.org

Rosalynn Carter Institute for Caregiving

RCI works to establish local, state and national partnerships committed to building quality long-term care systems and providing greater recognition and support for America's unsung heroes - the millions of caregivers, both family and professional, who provide us all with models of selfless service and hope for the future.
www.rosalynncarter.org

Resources listed on this website are not endorsed by IndependenceFirst or any of the contributors to "A Celebration of Caregiving: Portraits & Stories" but are listed, upon request or research for the purpose of providing people who give care or receive care, resources online in the areas of disability or caregiving. If you would like your caregiving-related organization or website listed here, please email us at
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